Michigan Attorney General Dana Nessel has issued a consumer alert regarding potential risks with commercial genetic testing services, following the unexpected bankruptcy of 23andMe. The alert emphasizes concerns about the privacy of genetic data, noting that the legal protections for such data are not as robust as those for medical records.
"While DNA testing conducted for medical purposes by a health care provider is strongly protected by federal privacy laws, results from private direct-to-consumer genetic services are not considered medical records and lack these legal protections," Nessel stated in the press release. This distinction is especially important as customers of 23andMe weigh the future of their genetic information amid the company's financial troubles.
For those seeking to protect their genetic information, Nessel's office has outlined specific steps. Account holders are advised to visit the company's website to delete their accounts and request the removal of their genetic data. Additionally, individuals who previously consented to the use of their data for research are encouraged to revoke that permission as an added precaution.
Genetic testing services are encouraged to provide clear instructions for users who wish to take these actions on their platforms. If consumers believe their genetic information has been mishandled or compromised, they can reach out directly to the Michigan Attorney General’s Consumer Protection Team to address their concerns.
