In Phoenix, a young boy's struggle with Spinal Muscular Atrophy (SMA) has become a beacon of hope for many, as the resources and care at Phoenix Children's Hospital have aided in his remarkable journey toward overcoming challenges posed by the disorder. Six-year-old Christopher Pantier has become an emblem of resilience; he can bike ride, predict weather, and show off gaming skills, despite being diagnosed before his second birthday with a condition that hinders his ability to walk.
According to a report by ABC15, Christopher's parents noticed that he was struggling with walking at just one year old. "He could push toys, and walk along furniture," his mother Ashley explained, "But he could never let go." Christopher's early intervention at Phoenix Children's Hospital started at 21 months, following his diagnosis, with a treatment plan that included a newly released drug.
Christopher now almost 7, thrives with the help of regular treatments and a clinical trial at Phoenix Children's Hospital, not to mention twice-weekly physical therapy sessions. "Having a hospital that's able to keep up with the new medical things that are coming out, and provides something like that has been incredible," Ashley told ABC15. The hospital's Child Life team also plays a crucial role in patient care, creating an environment where iPads and games under a tent during treatments are the norm, making the hospital a place "that kids want to go," she added.
Christopher's journey has not only changed his life but has also paved the way for his younger sister, who was also diagnosed with SMA. Early screening and treatment due to her brother's blueprint have allowed her to live a normal life at 3 years old. "Once we did we discovered how great they are, we can't imagine our life without PCH," Christopher's father, Joshua, said in a statement obtained by ABC15.
ABC15 is once again hosting a Telethon on April 10 to benefit Phoenix Children's Hospital. The event encourages community members to become "Heroes for Hope," offering opportunities such as the "Superhero Sidekick" program. Donors can pledge a monthly amount of $20 or a one-time gift of $240 or more to gift stuffed animals to children in care. Donations are accepted through the telethon's phone line at 602-933-4567 from 6:00 a.m. to 10:35 p.m., or online any time by visiting ABC15.
